How Illinois Bureaucracy Robbed Parents Of A Chance To Save Their Children From A Deadly Disease


Robin Maubach, who lived in Washington, Ill., wondered if something was wrong with her son, Dylan. The first sign was a head tilt, a condition that physical therapy couldn't solve. Then there was Dylan's fussiness, which the pediatrician treated as reflux.

Dylan initially met his early milestones, but his mother, a first-grade teacher mindful of child development, soon began to worry. Dylan's older brother sat up at 6 months; Dylan reached that age and never did. When he was 9 months old, Dylan stopped feeding himself.


At first doctors diagnosed Dylan with cerebral palsy. A visit to Children's Hospital of Illinois in Peoria led to the Krabbe diagnosis when he was 14 months old.

Like Spencer, Maubach took her son to the Krabbe expert in Pittsburgh to see if he could have a transplant.

But it was too late for Dylan too.


Radiuniverse Samsung S9 For Free

Want To Win - iPhone X (SOI) Click Here

Source : http://www.chicagotribune.com/news/watchdog/ct-krabbe-disease-illinois-met-20201010-story.html

How Illinois bureaucracy robbed parents of a chance to save their children from a deadly disease
Chicago Tribune and Hartford Courant Staff Named Finalists for 2018 American Society for News Editors Awards
Rauner vows to get newborn screening for Krabbe disease 'done'
Bomber's father bizarrely claims that the FBI CALLED his son to accuse him of deadly attack two days before he was shot dead
How to Honor Memorial Day
Legislators want answers on Illinois' failure to screen babies for deadly Krabbe disease
Why We Shouldn't Give Special Credence to the Political Views of Young People and Victims
11 Everyday Heroes Who Bring Healthcare to Those in Need
Kid Rock fan suffering from Down Syndrome gets the surprise of a lifetime when star turns up to sing him Happy Birthday in middle of a Michigan restaurant